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Friday, April 14, 2017

Hurricane Preparedness for People with CKD Sjogren's Awareness Month

I live in Florida, I have CKD, and I need to put together a hurricane kit, starting in May.  Since I was just diagnosed in March, I thought to myself, how do I make sure I will be safe in a disaster?  So, after some research I found a preparedness list on Davita, that even tells you how to break down your emergency rations into meals for 3 days.  Since, here in FL you can lose power for many more days than 3 days, I probably will double or even triple the items for my CKD, and the others in my family as well.  I would recommend keeping the CKD items in a separate area than the other food, maybe ziploc bags or sealed containers marked as such in your bin, bag, or box.  One other thing I will be looking into, is that I can register with my electric company as someone with a chronic illness, and they try to get them people restored first.  I do not use Dialysis, but if you do, or have O2 or any other item that is life sustaining, make sure you register with your electric company for sure.  I will be summarizing the items for CKD, and then sharing the link to all the info.

So, because people with CKD can really only eat certain items of food, setting up an emergency food kit can be tricky.  Since I eat a lot of fresh fruits, and veggies, I was wondering how exactly I would eat, when a lot of store shelf foods are processed, and high in salt or sugar.  I am not diabetic, but that doesn't mean I should suck down a ton of sugar either.


So this is the items they recommend for a 3 day diet kit for CKD, I will state changes I would make for me due to preferences.

1-  3 packages of dry milk or 4 eight ounce cans of evaporated milk.  Evaporated milk can be high in sodium, calcium and protein, so they do recommend watering it down before using, half and half.  Be sure if you choose evaporated milk that you have a way of opening the can, or it will be useless to you.

2-  1 to 2 gallons of distilled or bottled water.  They noted that if you are on dialysis, and you have no power, you should drink only 2 cups of water per day until dialysis can be restored.  This is a very small amount of water so be prepared for that.

3-  Powdered fruit drink 1 can or single packets.  I personally will not be doing this for me, way too much sugar.  Straight water will work best imo.

4- 1-2 cans of soda, except for dark colas.  Again, I will just add extra water here, or 100% juice, and Ocean Spray is pretty much the only one I use because it has the lowest amounts of sodium, and no preservatives.  Apple and Grape juice are low in potassium so good choices there too.

5-  6 boxes of single servings of cereal.  Don't use Raisin Bran.  Cereal is actually a very good source of iron, since almost all of them are fortified with iron.  They are usually low in sodium, potassium, and protein making them an even better choice.  Always read the labels to be sure, and keep in mind most are very high in sugar.

6.  1 box of sugar, or sugar substitute.  I don't know about this one being in my kit.  I just don't see a use for it.  However, if you are a diabetic, it probably would be a very good idea to have some kind of sugar in your kit, in case your sugar drops.

7.  Cans, or fruit bowls, they suggested 12.  These need to be low in potassium, so no raisins, oranges, or bananas.  I think most other fruits are low in potassium, except maybe kiwis, but be sure and read labels before adding them to your emergency food kit.

8.  8 small cans of unsalted meats.  I have never seen completely unsalted meats, especially in a can.  I have seen low sodium tuna, but the others suggested I have not.  I will be putting peanut butter in my kit, not meats. Peanut Butter is high in protein, however it is also high in iron, and other important nutrients.  I will add low sodium crackers, not bread, to my kit.  If you add the unsalted meats be sure to add mayonnaise, or something to make it with, unless you are going to eat it straight out of the can.

9.  Like I said above, a loaf of bread, small jar of jelly, and small jar of honey.  I will be adding all these to my kit, except the bread.  Will substitute crackers for bread.  Ritz makes a low sodium cracker, and it is the only brand that I have found that does, at least where I live.

10.  A box of Graham Crackers or Vanilla Wafers.  I will add both of these to my kit, as everyone likes these. I have not checked the sodium levels on either yet.  If these are high in sodium, cereal bars will be used.  They have good amounts of iron as well as other nutrients, and everyone at my house likes them.  I think they probably have preservatives, but I guess in an emergency I can't be too worried about that.

11.  4 to 6 bags of hard candy. This one is probably the easiest, lol.  Of course these will be high in sugar, unless you buy sugar free.

12.  1 package of marshmallows.  Nah, no thanks.  I will probably do bags of pretzels or something.  I hate marshmallows.

That is the list.  Of course always remember a can opener, and utensils.  I mean you could eat like a caveman.

I could not find my list for medications that kidney patients should avoid, it was for transplant only.  I might share it anyways, because they are damaging to kidney, why wait until you need a transplant to avoid them if you can.  Remember, the amounts shared are for one person, you, the kidney patient.  If you have more people in your family you will need to double, triple, quadruple, etc depending on how many people are in your home.

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