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Showing posts with label thisissjogrens. Show all posts
Showing posts with label thisissjogrens. Show all posts

Wednesday, April 26, 2017

My Typical Lunch for Sjogren's Disorder and CKD

I will be doing a final Sjogren's Awareness post, a kind of putting it all together, and my thoughts on it all, in a few days.  But, for today, I want to share a typical lunch that I have chosen to eat almost daily.  I do once in a while eat something else, but for most days this is it, with variations.  I drink one Sprite a day, no dark colas, and I am trying to be soda free altogether, but you know it is hard to give up everything.  Sprite is low in sodium, and has no phosphorous.  If you are diabetic, I am not, any soda is a not so good choice.  I alternate any of the items listed below, depending on what I have in the  house.

Lunch for anti-inflammation caused by Sjogren's and health for CKD.

Since bread causes inflammation in the body, and is high in sodium, I avoid bread at all cost.  I do eat pizza here and there, but I use no sauce, and thin crust.  So instead of sandwiches, I eat a salad with any, or all of the following depending on my supplies.

Baby spinach, instead of lettuce.  Why?  Lettuce has phosphorous in it, and while spinach does have potassium in it, it is a wonderful source of iron.  I try to eat small amounts of meat only, so I need to get my iron from somewhere besides a supplement which is horrible on the bowels.

For other veggies, cucumbers, celery, bell peppers, no carrots, tomatoes, croutons, bacon bits etc.

I put loads of fruit in my salad like strawberries, blueberries, pineapple, apples, and sometimes grapes.  CKD patients can eat lots of berries, and grapes.   However, citrus fruits, except lemons,and melons except watermelon should be eaten in limited amounts only, or avoided altogether.

For cheese, I use Sargento Baby Swiss only.  It is very low in sodium, and I use only small amounts since dairy increases inflammation, and has phosphorous.  Not all Swiss has low sodium like Sargento, though it is still lower than other cheeses.  Read the label, to be sure.

I always like to add a meat to my salad.  Since lunch meat is really high in sodium, I try to use lower sodium options, and still only a couple of pieces chopped up.  One egg can substitute as a meat source.  Eggs are high in phosphorous but are also a great source of Vitamin D, which is extremely important for kidney health.  Always use caution when eating too many eggs.

For the dressing I use Raspberry Vinaigrette, or Strawberry Vinaigrette with one teaspoon of regular Italian dressing.  The vinaigrettes are low in sodium in comparison to other dressings.  I was making my own Raspberry Vinaigrette, but it isn't exactly cheap, and only makes a very small amount, so I gave it up.

For a beverage, I drink only one cup of coffee a day, with either no sugar or honey in it, and small amount of french vanilla creamer.  I am going to get decaff so I can make my iced coffees, but I will have to limit the creamer. Like I said one Sprite, and I add two lemon slices to it.  I reuse the lemon slices in my water, to which I add a small amount of any Ocean Spray juice.  I use pretty much only Ocean Spray because it is low in sodium, and it uses no preservatives, high fructose corn syrup, and is all natural.  It is worth the extra 50 cents or so to buy it.  I use it to make my own flavored water.  A note about water, CKD patients should not drink tap water, apparently, but filtered water only.  We have a filter on our fridge, so that works, but just take note that not all bottled water is filtered, so bring your own, or read the label to find out.

I will discuss dinner later, a much trickier meal for anti inflammation and CKD.  Always remember, this is informational only, and not intended to be medical advice.  Always research options, and talk to your doctor before you make drastic changes to your diet, especially if  you already have other illnesses.  Again, I do not have high blood pressure, or diabetes, but many people with CKD, do so my choices might not fit your needs.

Saturday, April 1, 2017

April is Sjogrens Awareness Month

As promised, all this month, I will be discussing Sjogrens Syndrome. A disease I have been newly diagnosed with. Well, I still need a definite diagnosis via a salivary biopsy, but that will be soon I hope. My renal doctor is pretty sure that is what it is. So, why am I seeing a kidney doctor? I will get to that. Let's start with some basics first.

Sjogrens Syndrome is an Autoimmune Disorder. That means basically your body attacks itself, primarily through tears and saliva. At least that is where it starts. Those are the first two primary complaints of people who suffer from Sjogrens. They were for me. I have had dry, and so called gritty eyes, for as long as I can remember, at least since my early 20's. I am 47 now. My dryness, and vision issues that went along with it would come and go it seemed. Some days fine, other days not. I have seen eye doctors, and been given reading glasses, but no reason for why my eyes were "dry". Try eye drops was the most popular advice, as no disease of the eyes was seen. I personally figured it could be feasible that due to seasonal allergies, and lots of computer use, maybe allergy meds and tired eyes was just the problem.

However, when I got dry mouth, I would say within the last 5 years, I started to think of other things. Dry mouth is very distracting, it can drive you crazy. You are not really thirsty, but you feel like you have to have a drink. Now even though I didn't start to notice dry mouth until about 5 years ago, I have had issues with my teeth since I was a teen. I shrugged it off as all my family had bad teeth. Dry mouth destroys your teeth. So do a lot of other things, but so does dry mouth. One thing I did not realize, is the actual location of the Parotid Glands. Those are the glands that create saliva. They are located on the side of your face by your ears, down by your lower jaw, under your tongue, and then in other places, but much smaller. I have been suffering from migraines for probably 15 years, or so. About 4 a year, was typical. My point is the locating these migraines would start was right around the front and back of my left ear, and then travel down my neck, and up the side of my head. Right before Obamacare was passed, when insurance companies could still deny you care for pre-existing conditions, I was having an acceleration of migraines, about one every other week. I sought medical attention, and a CT of the head was ordered. My insurance company refused to do it saying some bogus reason, and I believe it was because they considered it a pre-existing condition. Since I didn't have 3500 dollars to pay for it out of my own pocket, I just suffered with it. Eventually they went back to the more normal average of 4 a year. I am now curious if those glands were swollen and that is what was causing the pain. I also have discovered that something that I thought might be a bad tooth, was probably my mandibular gland swollen and painful. This lasts for only about 2-3 days, so it never gets seen by my doctor. It also only happens about every six months. Since I started doing salt water rinses, it seems to help a lot.

How did I end up with a diagnosis of Sjogrens? For years I have thought I might have MS, or some other mystery disease. I had vague, strange symptoms that would seem to come and go with no explanation. I had researched Sjogrens before, as well. In December I was extremely ill, to the point where all I could do was sleep most of the day, or at least do a little bit then need to sleep. My eyes were doing some very strange things, to the point that I refused to drive for about two weeks. I could not really eat, and was very clumsy. I have always been a little clumsy but this was worse. I never had a fever, drank well, created urine, etc. No vomiting or diarrhea, etc. I thought I just had the flu because we had been so busy and I felt worn out around Christmas. After about a week I thought, wow this is some flu. I haven't had the flu in over 10 years, so I figured I was older maybe it was worse. Finally I told my husband I felt like I needed to be seen. My labs were off the wall weird, and it appeared I had some kind of kidney involvement. I was referred to a kidney doctor who said I have basically only one kidney working well. There is no absolute proof that Sjogrens caused the kidney issue, but it is highly suggestive. Since Sjogrens can attack other organs, especially for those with Primary Sjogrens, it is very probable. They also can not tell me how long my kidney was not working properly, but they can say it did not happen quickly. So, my focus for the month of April will be Sjogrens with kidney involvement. There are a lot of things I have had to learn about keeping my good kidney healthy, and since we live in Florida, I have to now prepare differently for hurricane season. I will be sharing all this info, plus basic Sjogrens info.

For now I want to let you know the symptoms of Sjogrens. I have had all of these, but they are not constant for me, especially the dry cough, and joint pain. To find more information about Sjogrens, visit the Sjogrens Syndrome Foundation. Please if you have any of these symptoms, along with dry eyes, and or dry mouth, please seek out your doctor to discuss. Do not take any info in this blog to be medical advice, it is not. It is information, to help increase awareness and knowledge of the disease. Anything that I try, or have done, since being diagnosed is under the approval of my doctor only. 4 million people have Sjogrens, but not many people know about it, and doctors don't either, which might be why it takes so long to get a diagnosis. Be persistent, and be an advocate for yourself. My doctor thought of Sjogrens right away when she heard I had dry eyes, and mouth, but has never had an actual Sjogrens patient.

1. Dry eyes and mouth, as I stated are the two most common early complaints.

2. Joint pain

3. Dry skin

4. Vaginal dryness

5. dry cough

6. fatigue



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